Another Resignation at Autism Speaks

From Dr. Eric London.

Dr. Eric London has announced his resignation from the Autism Speaks Scientific Affairs Committee. London is the Director of the Autism Treatment Laboratory at the New York State Insitute for Basic Research in Developmental Disabilities. He is also Director of the New York State Autism Consortium and a member of the Autism Science Foundation's Scientific Advisory Board. He is the co-founder of the National Alliance for Autism Research (NAAR).

Dr. London's letter of resignation is below:

After three years of great hopes for Autism Speaks being the optimal vehicle to advance autism science and treatment, I regretfully and sadly must announce my dissociation from this organization, including resignation from the Scientific Affairs Committee.

Despite the very excellent work that Autism Speaks has done in the area of awareness and legal advocacy, there are many differences which I have with the organization, mostly concerning the direction and prioritization of the science program. There have been numerous decisions made which I believe have adversely impacted autism research and none of those decisions were made upon the advice of the Scientific Affairs Committee. The processes with which science decisions have been made have been contrary to my hopes and expectations when the NAAR-AS merger was effectuated.

If this were the only issue, I might have continued to try to work from within the organization to influence science policy and direction. However, the pivotal issue compelling my decision is the position which Autism Speaks is taking concerning vaccinations. The arguments which Dr. Dawson and others assert—that the parents need even further assurances and there might be rare cases of "biologically plausible" vaccine involvement—are misleading and disingenuous. Through its website and other communications, Autism Speaks has been influential and contributory in encouraging parents' doubts. By preferentially investing and advocating for the use of limited financial resources on the "biological plausibility" argument, the organization is adversely impacting the advancement of autism research.

Recent reports have documented significant outbreaks of measles and other infectious diseases which could have been controlled and even eradicated. The lowering of the vaccination rate has already led to deaths. If Autism Speaks' misguided stance continues, there will be more deaths and potentially the loss of herd immunity which would result in serious outbreaks of otherwise preventable disease. I further fear that if and when herd immunity is lost, there may be a societal backlash against the autism community.

In my role as an Autism Speaks Scientific Affairs Committee member, I would be lending credibility to an organization whose scientific agenda and positions I can no longer ethically support. Please accept my resignation, effective immediately. If anyone would like to discuss this with me further, please do not hesitate to contact me.

Sincerely,
Eric London, MD

Tony Attwood FAAAS Poetry Slam

There has been a lot of discussion on Wrong Planet and other sites about ASAN's petition calling on Tony Attwood to stop associating with FAAAS and Maxine Aston, to which Attwood replied by attempting to defend those associations via a form letter on the FAAAS website and other places. ASAN reposted and critiqued the letter, and by now this online war of words has been going on for two months. Attwood still hasn't seen fit to simply pick up the phone and call Ari Ne'eman, which gives the rather unfortunate impression that he can't bring himself to speak with a self-advocate as an equal.

As several people have pointed out, the petition was never intended as a personal attack on Tony Attwood, but as a constructive criticism. To be clear, my posting on the subject isn't motivated by any grudge either; in fact, I have to give him credit for his high level of energy, chutzpah, and crowd-pleasing skills. He is a masterful promoter. Because he has been so successful in positioning himself as a trusted figure in our community, however, I feel very strongly that Attwood has an ethical responsibility not to abuse that trust by associating with those who would harm our community.

The content of his website clearly reveals that such associations are still ongoing. As of today, a Google search showed 39 results for FAAAS on Tony Attwood's website. On one of his pages, Attwood touts an anthology of horrid poetry and essays called "The Book of FAAAS," which includes an article comparing autistics to prickly cacti and their non-autistic partners to wilting affection-starved roses. I'm not going to quote from it, out of consideration for readers who might not have a barf bag handy.

But it got me thinking, why should FAAAS have a monopoly on bad writing and ridiculous analogies? As I see it, we should create our own collection of sorta kinda poetic stuff making clear what we think of the situation. Feel free to post 'em in the comments, dear readers. Literary talent is definitely not required. Here's my contribution to get things started:

SKUNK CABBAGE

In yonder swamp skunk cabbage grows,
With shiny leaves of gleaming green.
The stench makes plain it's not a rose,
No matter how much it may preen.
Its foul reek assails the nose,
And many voices call for change.
Will Attwood listen? No one knows.
His lack of action's mighty strange.

Rethinking Autism in Vanity Fair

Vanity Fair has a short article about a new website, Rethinking Autism, which can briefly be described as a satirical pro-neurodiversity site featuring sexy videos that mock celebrity endorsements related to autism. These clever videos are a perfectly targeted and totally hilarious send-up of a certain former Playboy bunny's autism profiteering, and they had me rolling on the floor laughing. I've reposted one of them below. Jenny, you've met your match this time.

Autistic Parents: Not Such Rare Birds

Melody, the administrator of the AS Parenting website and forum, has announced that she is seeking new members and contributors. The site had been inactive for the past few months because of her family's move to Dallas. She says that she envisions the site as "all encompassing. Not only for parenting tips, but general life tips and for policy/politics."

I hope that those of my autistic readers who are parents will consider participating in this very worthwhile effort to provide an online community and positive resources for parents on the spectrum. At present there is a great dearth of such resources, not because autistic parents are uninterested in them or exist in numbers too small to benefit from them, but because the widespread stereotypes to that effect have discouraged their development.

We've all seen claims that autistic parents are as rare as unicorns, but it's actually quite common for a parent to be identified as autistic after his or her child has been so identified. The flourishing autistic community on the Internet has made autistic parents, through their presence on websites, much more visible; I'll note that the Autism Hub alone has at least ten autistic bloggers who are parents. As for the small but vociferous group of haters in the Maxine Aston/FAAAS orbit who contend that many children are growing up neglected by autistic parents, their unfounded stereotypes also can be effectively rebutted by the existence of positive parenting communities like AS Parenting.

It's pretty hard to stereotype autistic parents either as near-nonexistent or as cold and unfeeling when many of them are actively posting on parent community forums and seeking advice on their kids' playdates and homework, just like their non-autistic neighbors in suburbia.

FAAAS Social Work Seminars: Lessons in Hate

Before I slog once again into the fetid swamp that is FAAAS, I'm first going to mention a recent advocacy success in Maryland, where new legislation has been passed to safeguard the rights of citizens with disabilities regarding child custody and adoption proceedings. The fact that a person has a disability, whether mental or physical, now cannot be a reason for finding that the person is unable to care for a child, in the absence of specific evidence relevant to the family's circumstances and the child's best interests.

Meanwhile, in the less enlightened state of Massachusetts, which is ground zero for the hatred and destruction of families wrought by FAAAS, true believers in Maxine Aston's Cassandra cult are teaching continuing education seminars that indoctrinate social workers to treat autistics as defective and unfit to live in families. FAAAS member Harriet Simons regularly teaches such seminars at the Massachusetts School of Professional Psychology, such as this course in April. A similar program was presented in December by Grace Myhill, a social worker who is currently leading Aston-based support groups that are, to my great disgust, sponsored by the Asperger's Association of New England (AANE). Here's a link to the program's ugly content, from which I quote briefly:


"When a woman attempts to work through a problem in the relationship, the man with AS may respond to his partner’s feedback, expectations, requests or demands with denial, withdrawal, or even verbal or physical abuse. His rage or depression, problems with stable employment, or limited ability to parent then become additional stressors for the wife."


Nasty stereotypes like this have a long history of leading to actual discrimination against people with disabilities, including the serious issue of discriminatory treatment in child custody matters that the Maryland law addressed. Those who call themselves autism advocates while endangering our families by promoting the bigoted views of FAAAS and Maxine Aston in their associations, such as Dania Jekel of AANE and Stephen Shore (who recently wrote the foreword for Kathy Marshack's repulsive book that compares a relationship with an autistic person to living in prison, a war zone, and "a black hole of nothingness"), should be aware that they do so at the risk of losing whatever respect they might have had in our community.


Edit, June 4: I have just been informed that an Australian law firm, LAC Lawyers, has a page on its website advertising family law services "for people who have been affected by someone with Asperger's" and quoting extensively from the Potential for Abuse article that was recently removed from the ASPIA website in response to international condemnation.

http://www.laclawyers.com.au/legal/Asperger%27s-Syndrome.aspx

To take action against this blatant appeal to prejudice and disability stereotyping, I've provided a link to a site that explains how to file professional disciplinary complaints against lawyers in New South Wales.