Whose Planet Is It Anyway?

Saturday, October 31, 2009

Segregated Workplaces

I've seen many blog and forum posts and articles about Specialisterne, the Danish company that recruits autistic workers for software testing positions, and similar enterprises that seek to hire autistics for jobs thought to be especially well suited to their talents. Quite often, these companies are described in glowing terms, along the lines of, "Look, wow, there's a business that actually hires autistics!"

Well, okay, it's good that these companies have hired autistic workers who had been denied jobs elsewhere. But should it be seen as a fabulous, wow-inducing event when an employer simply obeys the law by giving fair consideration to, and then hiring, a qualified applicant with a disability? The focus of this conversation, as I see it, is grossly misplaced. Rather than being all about the nice guys at Specialisterne who hire autistics, it should be on the prejudiced employers who don't, and on what can be done to meaningfully enforce the equal employment opportunity laws and drag every one of those bigots kicking and screaming into the twenty-first century.

Also, to the extent that companies specifically seeking to employ autistics have been described as engaging in affirmative action, that's not what the concept is supposed to be about. Affirmative action was never meant to result in segregated workplaces where increased efforts were made to hire minorities to work in separate locations. It's about changing attitudes in mainstream workplaces to make them more welcoming places for minority employees. Separate but equal just doesn't cut it.

I'm reminded of an incident that occurred in the mid-1980s, when racial integration in American society was nowhere near what it is today. At a predominantly white university, an African-American student was graduating with a degree in engineering after years of having had bricks thrown at his head from dorm windows, occasionally being flunked by bigoted professors when he had done as much work as his white classmates, and so forth.

A recruiter for a major technology company interviewed him on campus and expressed great interest in having him visit the company for a second interview. He was at first quite excited at the prospect of what looked like an excellent job opportunity. As it turned out, however, the location that he was invited to visit was not the company's main building, but was instead a segregated facility for minority engineers. In its promotional materials, the company tried to dress it up in nice pretty flowery terms as a place where tomorrow's leaders could gain experience, et cetera. That didn't do much to hide what was really going on there.

The young engineer ended up taking a job with a smaller company instead, where although the starting pay was less than he would have gotten at the larger company, he was treated the same as all the other employees. Within a few years, his skills and diligence had impressed management enough so that he was promoted to a position of greater responsibility and much better pay.

Moral of the story: Don't settle for a segregated workplace. Those who praise such facilities for autistic workers often cite statistics purporting to show that very few autistics could find jobs otherwise. I've been arguing for years that such statistics are grossly inaccurate because they do not take into account the large number of employed autistic adults who never got a diagnosis, which often happens because a worker does not know that he or she is autistic, or perhaps because the worker is afraid of discrimination and has decided to stay "in the closet."

A recent British study, discussed in detail by Joseph at the Natural Variation blog, shows that despite rampant stereotypes to the contrary, most autistic adults are in fact employed. Rather than simply interviewing people who already had an autism spectrum diagnosis, the authors of the study took their research subjects from the general population and then evaluated all of the study participants to determine how many of them met the criteria for a diagnosis. This approach resulted in much more accurate figures than previous studies because it removed all of the confounding factors having to do with how and why a diagnosis might have been made.

Although the autistic participants in the study had a lower rate of employment than their non-autistic counterparts, the disparity was nowhere near as large as the previous studies had indicated. What this means to me is that, yes, we need to do more to ensure that every autistic job-seeker has a fair opportunity to find work; but we don't need to go about it by setting up segregated workplaces that reinforce stereotypes, while letting prejudiced mainstream employers go merrily on their bigoted way.

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Friday, October 23, 2009

Autism Speaks, We Need Answers

Autism Speaks, which still hasn't learned its lesson about fear-mongering advertising and seems incapable of doing so, has decided to exploit a recent study of autism prevalence in the United States to incite even more false epidemic hysteria by way of a new fundraising campaign called "We Need Answers."


autismspeaks.org/donate/we_need_answers.php


The study found a parent-reported autism prevalence rate higher than previous US estimates, although not significantly different from the figures found in studies from the UK and other countries. Notwithstanding the fact that this new study merely brings autism prevalence estimates in the United States more in line with those from other parts of the world, Autism Speaks howls on its web page, "These new findings reinforce that autism is an urgent and growing public health crisis…"

Well, no, these findings don't prove anything of the sort. About all that's being reinforced here is Autism Speaks' penchant for unethical advertising based on distorting the facts, which isn't anything new either. But I have to agree with them on one point: We need answers. No, not to the question of why there are so many autistic people in the world, which is a question that I consider just as obnoxious as if it had been asked about any other minority group. Here are just a few of the questions I'd like to see them answer:

(1) Autism Speaks, how long do you think you're going to be able to keep large numbers of parents obediently marching in your fundraising walks to pay your executives' hefty salaries and to fund your eugenics-loving researchers, when it's increasingly obvious that almost none of the money raised goes back to communities for family services?

(2) When large numbers of disability groups take the almost unprecedented step of publicly condemning an advocacy organization's harmful advertising and unrepresentative practices, doesn't that suggest it might be a good idea for said organization to rethink its approach?

(3) Do you really expect that nobody is going to notice when, instead of encouraging meaningful participation in decision-making by those on whose behalf you pretend to speak, you curse self-advocates and claim that they don't exist?

We're never going to see any responses to these questions, of course—but Autism Speaks' stonewalling doesn't change the fact that we need answers.

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Wednesday, October 14, 2009

Taking to the Streets

People who don't understand that autism prevalence has remained stable often ask how there can't be an epidemic when they have seen large numbers of autistic children only in recent years. Where were all the autistic people before now?

Of course, before the diagnostic criteria were broadened, most were not identified as autistic and were looked upon as part of the general population. Others were rarely or never seen in public because they were kept hidden away at home by their families or were sent to institutions.

As reported by Hard Won Wisdom, it appears that at least one older autistic person is taking part in the ADAPT protests in Atlanta, Georgia, which began on Sunday, challenging the state's failure to close down institutions and to provide community services and supports instead. A protester who calls herself "Spitfire" and who was thought to be autistic as a girl in the 1950s talked about how ADAPT had saved her from a nursing home. She described her participation in numerous protest actions since then.

In Columbus, Ohio, members of the Autistic Self Advocacy Network also held a protest this past Sunday, holding signs and handing out leaflets at an Autism Speaks walk to inform the participants about Autism Speaks' hateful advertising, exclusion of self-advocates from leadership positions, eugenic aims, and minimal services for families. You can find articles about the protest on the ASAN Central Ohio blog and also on the ASAN Southwest Ohio blog. And here's a video of the protest:





I expect that in the near future, as we see more autistic people coming out of the closet and onto the streets to demand equal rights, there won't be so many questions about where the older autistics are.

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Wednesday, October 07, 2009

Supporting Allies

This morning, the Autistic Self Advocacy Network released a joint letter from over 60 disability rights organizations calling on sponsors, donors, and supporters of Autism Speaks to end their support for the organization because of Autism Speaks' hateful attitudes and exploitative practices. ASAN also issued a press release and set up a petition site where individuals can endorse the letter.

The disability rights advocates who are supporting ASAN and the autistic community in this effort are not receiving any financial benefit whatsoever from doing so. Rather, they are standing in solidarity with our community because it is the right thing to do. In the interest of reciprocating, and to advance the rights of people with disabilities everywhere, I suggest that the members of our community read the list of signatories to the joint letter and provide assistance to their advocacy efforts. In particular, ADAPT has an event planned in Georgia beginning this Sunday. If at all possible, go there and help out! Details below:


COMMUNITY ADVISORY

Community Choice is a Civil Right: Disability Rights Direct Action Arrives in Atlanta

Who: 400 ADAPT activists from Georgia and across the United States
What: ADAPT Fall National Action 2009
When: October 11-14
Where: ATLANTA, GEORGIA!

Links: www.adapt.org and http://www.disabilitylink.org/docs/adapt.html

Direct action is about to strike the hometown of the Reverend Martin Luther King, Jr. As the nation continues to struggle with health care reform, ADAPT grassroots disability rights and senior activists continue to advocate for the end of the institutional bias in Medicaid and a revolution in community choice.

Over 62,000 Georgians with disabilities live in nursing homes and institutions. The 1999 Olmstead Supreme Court case, fought by Georgians, guarantees that no one has to live in a nursing facility or institution against their will---it is a civil rights violation. Now, ten years past Olmstead, Georgia remains out of compliance and thousands of Georgians with disabilities lack adequate access to community supports, like millions across the nation. The percentage of Georgians with disabilities under age 65 who live in nursing homes is on the rise. When the system doesn’t work, it’s time for the people to take action.

Neither of Georgia’s Senators officially support the Community Choice Act or Community First Option. Adequate funding for Georgia disability programs is currently in danger. Federal institutional bias affects every single state. Through Atlanta, we will expose to the nation how nursing homes and institutions steal the lives of people with disabilities and seniors.

We are kicking off on Sunday, October 11, with an afternoon Community Choice March through Atlanta. We will follow up with three days of direct action. Stay up to the minute with Twitter updates and action alerts starting Sunday. Follow Nationaladapt on Twitter or go to www.adapt.org and hit the ADAPT Twitter button to check out our tweets.

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.

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Sunday, October 04, 2009

Alfonso Cuarón Praises Child Rapist

The video I Am Autism—created by Alfonso Cuarón and Billy Mann for Autism Speaks—first describes autistic children as embarrassing, family-destroying burdens who don't belong in public places and then proclaims itself to be an expression of "love for our children."

As if that weren't sick and twisted enough, Cuarón made it clear how little interest he really has in the welfare of children by signing a petition in support of Roman Polanski, the infamous child molester who fled from justice in 1978 after admitting that he had drugged and raped a 13-year-old girl. Polanski was arrested last weekend while traveling from France to Switzerland. The text of the petition trivializes the crime as "a case of morals," praises Polanski's achievements as a film director, offers him "support and friendship," and ends by declaring that the petition's signatories "demand the immediate release of Roman Polanski."

That's so disgusting, it just boggles the mind. Cuarón seems to believe that autistic people should be kept locked away forever, as indicated by the statement in the video that it is "virtually impossible" for autistics to go out in public, but at the same time Cuarón evidently thinks it would be just fine to turn a confessed child rapist loose to prey on other vulnerable little girls.

The despicable attitudes toward children shown by Alfonso Cuarón and Autism Speaks have no place in our community.

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Thursday, October 01, 2009

Marc Sirkin, Apologist for Hate

Over the past few days, the clumsy attempts at damage control by Autism Speaks' chief community officer Marc Sirkin have reminded me of a certain former Iraqi Information Minister who acquired the colorful nickname Baghdad Bob as a result of his absurd propaganda during the US invasion in 2003, stubbornly insisting that American forces were surrendering even as the tanks rumbled through the city.

In honor of Sirkin's bumbling, I've created a parody skit in which Clueless Marc, the host of the We Hate Autistics Community Radio Show, has a conversation with a caller:


CLUELESS MARC: Hello and welcome to We Hate Autistics Community Radio. I suppose that, like the many parents I've just been discussing, you want to talk about the excellent I Am Autism video and how accurately it reflects your life.

CALLER: You know, Marc, not everyone who has an interest in autism issues is a parent.

CLUELESS MARC: Well, of course not. Grandparents, siblings, and other relatives all have to deal with autism's awful burden and embarrassment too…

[angry crowd chanting]

CALLER: Gee, Marc, it sounds like you might have some protesters outside your studio.

CLUELESS MARC: No, that's just Suzanne Wright watching her soap operas in her cushy office. She likes melodramatic storylines and often turns the volume up too loud.

CALLER: Yeah, I've noticed that.

CLUELESS MARC: Let me tell you about how much support Autism Speaks has gained from people all across the world recently! Our walks and our public relations efforts have been going wonderfully well.

[squeaky wood noises]

CALLER: That wouldn't happen to be the sound of your nose growing, would it?

CLUELESS MARC: Of course not. I had my nose perfectly sculpted by one of the finest plastic surgeons in New York.

CALLER: Word has it, Marc, that you admitted in an interview with New Scientist about the controversy that there's no factual basis whatsoever for the video's claim that having an autistic child is sure to make a marriage fail. What's up with that?

CLUELESS MARC: The video was just a personal poem from a father's perspective and was not intended to reflect Autism Speaks' views.

[tires screeching, two icky-sounding splats]

CALLER: That's Billy Mann and Alfonso Cuarón getting thrown under the bus as Autism Speaks frantically backpedals on the video, disclaiming all responsibility for its extensive involvement, from Suzanne Wright's personal solicitation of video footage to Autism Speaks' much-publicized showing of the video at a United Nations conference. Aren't you starting to worry about your job, Marc? After all, being a new hire and a very visible face in the community, you're the next logical sacrifice when the furor gets stronger.

CLUELESS MARC: Gah, I'll have to go back to working from my basement as a consultant, barely able to pay my greens fees! Um, I mean, of course there's no reason for me to be worried about my job, Autism Speaks is a tremendously strong organization and always has shown great loyalty to its people.

[printer starts churning out resumes]

CALLER: Well, good luck finding another gig, Marc.

CLUELESS MARC: La, la, la, I can't hear you! This call must have accidentally gotten disconnected by some strange fluke! And now, I'm excited to introduce the next guest on the We Hate Autistics Community Radio Show, a clever fellow by the name of Bernie Madoff who has several insightful things to say about Autism Speaks' business model…

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