Whose Planet Is It Anyway?

Tuesday, May 30, 2006

Mighty Big Fleas

There's an old country saying that "if you lie down with dogs, you'll wake up with fleas."

That saying often comes to mind when I look at blogs and comments by parents who have gotten involved with a biomedical program of some sort. I don't mean the hardcore fanatics who build paranoid conspiracy-theory websites that reflect a total disconnect from reality. Rather, I'm talking about well-intentioned, mostly rational parents who claim that they're just trying different options to help their child, that a particular diet or therapy has been good for their child, and that everyone ought to respect their right as parents to make decisions in their child's best interests.

Well, okay, I don't have a problem with parents who want to try reasonable alternative diets for children who have food intolerances, as long as the children are getting proper care from competent doctors and are not being abused or malnourished. Unfortunately, that often is not the case when we're talking about "biomed" in general. There has been some
discussion recently on the autism blogs about the responsibility of bloggers for the consequences of their words; and in my view, that applies with equal force to careless advice, careless stereotypes, and careless endorsements.

This is what I have to say to parents who assert that they are "curing" or "recovering" their child (or similar language) through biomed: You need to understand that when you write something like that, you're not just recommending the nice nutritionist who sold you some vitamins and advised you not to let Johnny stuff himself full of junk food. By making such a broad statement, you are condoning and perpetuating and, by association, making yourself morally culpable for the worst abuses of biomed.

So far, that includes the
quack treatment of chelation, which can be fatal. Although some autistic children have been fortunate enough to survive intravenous chelation, they have been put through much unnecessary pain and suffering with no medically proven benefits. The long list of bogus cures has expanded to include injections of gold salts, a rheumatoid arthritis remedy that is known to be highly toxic. Biomed quackery knows no bounds and no shame: there is even a "protocol" for using chemical castration drugs on autistic children.

As horrifying, abusive, and life-threatening as these fraudulent therapies are, it can fairly be argued that the worst crime of the biomed hucksters has been their routine use of hateful and dehumanizing language to describe autistic people. By referring to autism as a plague, an epidemic, an abyss, etc., they have deliberately created a very profitable (for them) culture of despair in which some parents desperately try every sham therapy that comes down the pike, believing that the risk to the child is justified because it's
better to be dead than autistic. And it is only a short step, as we have tragically seen, from biomed's cynical marketing of despair and hopelessness to a bleak social environment so bereft of decency and tolerance that some consider it morally justifiable to murder an autistic child.

Them's some mighty big fleas.



  • I agree. People don't see how saying, "Well, we're doing RNA drops for Binxy and our DAN! doctor doesn't go for anything but homeopathic chelation and craniosacral therapy...," could be really, really bad. When they buy totally bogus therapies and then share the "fabulous results"... like I've seen lots of these great endorsements for NAET... a system that could leave a kid with a deadly peanut (shrimp, whatever) allergy dead because he was told that NAET (which is something akin to witch-doctoring... actually, that's probably an insult to witch-doctoring) totally cures allergies.

    If I say, for example, that the KKK is selling these great cookies. They taste really great and, well, yes, the profits from the sale of the cookies do go to support the burning of crosses on lawns....but that's not what I'm "into" I'm just into the taste of the cookies... I'm still part of the bigger problem.

    There's an attitude, of, yes, well, no one knows what this product MIGHT do to my kid... but it's probably safe and autism is the worst thing on the planet, even if this stuff did cause a 1 in 10,000 death rate, the risk is worth it... we don't know what the death rate is...it could be very much higher... but we choose to believe Dr. M____ when he says he's never heard of the stuff hurting anyone. He's a nice guy...

    It gets hairy, too, when people start saying, "Welll, I don't think my kid neeeeds to be vaccinated for polio... and I sort of tell my friends the same thing... and measles is a disease of the past... my kids won't get it and if they do it will be mild..." That could directly lead to deaths without anyone making a profit from a quack remedy.

    Culpability can extend beyond just the main actors in a murder.

    I have a BIG problem with Stephen Shore speaking at Autism One this last weekend. I think by doing so (and he's been to a lot of these kind of things) he passively gives a thumbs-up to this whole industry that thrives on, "better dead than autistic" and "if you love your kid you'll mortgage your home to pay for a far infrared sauna and a water filter... and RNA drops and... a gajillion mail order lab tests..." That's my opinion, though I don't think Stephen understands what harm he is doing, and I'm sure he sees it differently than I do.

    By Anonymous Camille, at 3:56 PM  

  • I think you lose credibility when you harp on the "better dead than autistic" thing. Nobody's intentionally killing kids but better cured than autistic is certainly a good thing.
    DMSA and ALA haven't killed anyone and that's the mainstream treatment from DAN. It also happens to be the mainstream treatment from people like Orac for mercury poisoning. So, comparing DAN to the quacks who use EDTA just exaggerates your argument and makes you look foolish. I'm always happy to point out to neurodiverse folks when they make themselves look foolish. Remember, if you detoxify yourselves, your brains will work right.

    By Blogger Fore Sam, at 5:21 PM  

  • Nobody's intentionally killing their kids, Sam? Are you fucking kidding me? Two autistic kids were murdered by their parents within the last *month*. And they'll never be convicted, you just watch.

    I'm not even touching the rest of your absurdity, because your insistence that your mind somehow works better than abfh's is laughably trollish. But you'd best get your facts straight before you start calling other people foolish.

    By Anonymous Anonymous, at 5:56 PM  

  • I also agree and I wanted to tell you how pleased I am when I see a new entry from you on the hub.

    Fore Sam: Your argument that one form of chelation is safe over another is a perfect example of what ABFH said in her post: By making such a broad statement, you are condoning and perpetuating and, by association, making yourself morally culpable for the worst abuses of biomed.

    So even if your chelation agent of choice hasn't yet killed anyone you are still contributing to the atmosphere of cure and chelate at any cost. You share responsibility for every death related to biomed treatments.

    It's tragic when any child is killed, autistic or not, but is much more tragic when a child is killed because he or she is autistic.

    By Blogger notmercury, at 6:01 PM  

  • OK, I screwed up. I should have said nobody is killing their kids with chelation.
    Sorry but I don't share one bit of responsibility. When I discuss chelation with people, I advise them of the dangers of EDTA. When a kid is already dead mentally due to mercury poisoning, there is no choice. You either try to cure him or you torture everyone in your family with autism until the day arrives that the kid has to be sent away. When he gets sent away, his life is over because no God damn psychologists who runs the institutions are going to attempt to help him. All they do is to provide custodial care. That's what my son with severe autism faces. If he dies young, I will rejoice for him that he has excaped the nightmare that was his life. Not being able to speak or communicate in any way sucks. Not having any friends sucks. Not being able to read or write sucks as well as never having the joy of all the other things we take for granted.
    You people with kids who are not severe don't have a clue. Not attempting to cure those severe kids is unquestionably child abuse. Your anti-cure rhetoric sucks.

    By Blogger Fore Sam, at 6:41 PM  

  • FS,
    Scary words even for you.

    You people with kids who are not severe don't have a clue. Not attempting to cure those severe kids is unquestionably child abuse.

    Why assume that other people have "kids who are not severe" and don't know what it's like? Should that give you some sort of moral carte blanche?

    Do you think you are the first or last person charged with raising a disabled child? If you can't handle the responsibility then get some help but stop trying to justify your desperate search for a cure and deep denial by trying to suck others into your fantasy world where you and your son will be playing golf together in a year or so once you have all of the mercury removed.

    You've been chelating for a long time John and your son is still and probably always will be autistic. He is not mercury poisoned or you would use words like cured or recovered instead of recovering year after year.

    I don't expect that you will take responsibility for trying to get other people to chelate their kids. You can't accept responsibility for anything unpleasant in your own life. Responsibility isn't in your vocabulary.

    By Blogger notmercury, at 7:09 PM  

  • Stephen's work is partly an attempt to bring an autistic face to the table. I attended ASA once and got the creeps from it even though it was pretty benign. It felt like a place where I was not welcome without my nt game face plastered on. It didn't help that my nt roommate would say things like (at a lunch table for four in a restaurant) "She sounds JUST like my daughter!! I can't believe it!!"--after I began to lose a grip on my one sentence at a time performance and kept speaking. It didn't matter that "she" (ME!) was sitting right there being discussed in third person. I was the Elephant Man, nothing more, nothing else and I had to see (as I did on Barb Kirby's old listserv for parents of spectrum kids) that my role was to assist without any reciprocal assistance from them. "Turn around Mr. Merrick."

    Stephen is taking a calculated risk in his outreach. I'm also severe AD/HD-I and those conferences are nothing like ASA. Why? Because MOST of the biggies in AD/HD research, practice, and resource development are AD/HD themselves: Sari Solden, John Ratay, Ned Holliwell [sp] and many, many more know AD/HD from the inside out. And they are utterly credible because they've got both personal testimony and scholarship/professional practice covered. They really are the biggies in the field. Perhaps because of this or how this came be is because organizations like CHADD are clearly for parents, professionals, and persons with AD/HD. It's spelled out that way in CHADD's charter. (I think there must have been a time and place when this wasn't so but I've been unable to discover it.) It's a good community even if a bit too cheery.

    So here we are with Stephen and Lianne, so far just the two I know of, as the adepts among us yet they seem to have provisional acceptance in p&p circles, no matter how much they give, no matter how much they're made to cringe. Is it even worthwhile to ponder how it might be if autistics ran the p & p show and how long that would take? But we can't just all go to Ph.D.school. Despite that, I regret it couldn't happen, because AD/HD is not as threatening even with the startling stats on incarceration, traffic deaths, and other impulsive consequences, at least an ADDer can be fun to have around and that redeems them/me. Autism flies in the face of every bit of social neediness NTs [capitals]have. We won't reward their attention to us with the right kind of affirming affect and this is unacceptable and profoundly disturbing. We are permanent strangers in town.

    Many nts [lower case] who are not socially needy would welcome us but they are drowned out by the people who rise to the top of organizations like ASA because such taking charge satisfies their ego needs. This may not be 'ego needs' used definitively but from my standpoint as someone who has been NT-watching all these years. If an NT beams at someone and the person don't beam back, the non-beamer had better be careful, because s/x/h/e is violating a crucial code.

    I fear Stephen may be making a pact with the devil in order to break through and that's a pity.

    By Blogger j, at 8:24 PM  

  • Camille: Yeah, I have just two words for Stephen Shore. Curebie token.

    Fore Sam: There isn't enough flea powder in the world for you.

    Anonymous: The way things have been going lately, it looks like it's open season on autistic kids. And the death count soon will be in the millions as a result of prenatal screening if the anti-autism hysteria goes on much longer.

    Not Mercury: Thanks! I always enjoy your well-reasoned essays too.

    By Blogger abfh, at 8:32 PM  

  • NM;
    If your kid can function but has some problems, the need to cure him might not seem so crucial, especially when you have herds of so called experts practicing their quackery of using some therapies to address the symptoms. You can get all the improvement you want out of junk like ABA but you'll still have an autistic kid.
    The thing you just don't get is that if I don't remove the mercury, my son will never play golf. He'll never get laid either.
    I think I've done 42 rounds of chelation, a few months shy of two years. I could go faster and I could give him higher doses of ALA but I'm going slow for safety.
    Will you accept responsibility for talking people out of helping their children with your nonsense after the studies are done that prove it works? My son can't wait for the damn studies and CDC approval. Neither can yours.

    By Blogger Fore Sam, at 8:51 PM  

  • ABFH;
    You don't have to worry about pre-natal screening since autism is not genetic.
    As for the flea powder crack, I've had worse said to me. It's nice to know you care but I'm not ready to get rid of my wife yet.

    By Blogger Fore Sam, at 9:07 PM  

  • Not genetic my ass.

    I'm 3rd generation autistic. My dad and my grandmother are both aspie. I'm autistic with a mecp2 mutation.

    There are many families like this. I taught a 4 year old tumbling (cutest, happiest little kid in the world)-his dad is an Aspie engineer. 2 other kids in the class, their grandmother has some major traits.

    Look inside yourself, Mr Best, for those obsessive traits. The harping on things. The black and white thinking. The rigidity of opinion.

    It ain't mercury. Drowning in denial never helped anyone, but it's killed several.

    By Blogger Kassiane, at 11:55 PM  

  • Kassiane;
    I thought you had Rett's syndrome which isn't autism.
    Does your grandmother get flu shots? Let me know if the Asperger's turns into Alzheimer's.
    My son had a grandmother and a great grandmother with Alzheimer's. That shows a family trait from both sides for an inability to rid oneself of mercury. Perhaps the mercury in your ancestors caused the gene mutation that screwed up your life. One of those grandmothers also had issues before she was diagnosed with Alzheimer's.
    Aren't you the one who was telling me about your high IQ? You should start reading the EOHarm list and learn more about mercury. I don't blame young people for becoming confused about the facts when listening to the nonsensical spin put on this subject by the people who caused the problem.

    By Blogger Fore Sam, at 4:50 AM  

  • Clearly Mr Best has no idea about genetics.

    You see, there are several IDENTIFIED genes involved in autism. My dad inherited them from my grandmother (who has never had a shot in her life TYVM). Then he passed some onto me. Either in the testicles, or shortly after fertilization and the zygote that was to become me, a bit of the MecP2 gene got into a wee missense mutation.

    HOWEVER. My clincal diagnosis was autism from the beginning. The only thing that has changed is it is now "autism with MecP2 mutation". My Rett traits aren't full syndrome, clearly, so they left it as autism with a qualifier for records purposes.

    See how that works? I'm SMART. That's why I know about genetics, and how mutations work, and how it's possible to have the autism genes from my Aspie father and the MecP2 gene from wherever it got mixed up BOTH AT ONCE! Imagine that.

    EOHarm is a bunch of abusive fanatics who just want something to blame besides their own gametes. I know more about what metal poisoning is actually like than you or your child ever will, god willing. It's child abuse to treat your child for a condition he doesn't have.

    Open your eyes. Think. I know it's hard, with only 3 brain cells and Mo's on vacation...but really. You can do it.

    Better a RettDevil than a Rescue Angel any day. You're so bitter.

    By Blogger Kassiane, at 5:33 AM  

  • Yeah Kassiane, I have an Aspie father too. He's a seriously obsessed alternative medicine enthusiast and has chelated himself several times and gulped down every supplement known to man and god. It hasn't made him one iota less autistic.

    John, you're the one who just doesn't get it. You talk about your son not being able to play golf or get laid if he isn't "cured." What do you think will happen to your son as the result of your propaganda calling autistic people "dead mentally" and other crap like that? Your son may learn to play golf, but his chances of ever being invited to join a country club or ever being able to date outside his "race" will be about the same as that of a black man in the days of Jim Crow. I wouldn't be at all surprised if I woke up one day and found a news story about an autistic man getting lynched for making advances to a non-autistic woman.

    And before anyone picks on me for using the word "race," it's a cultural construct, not a scientific term. I believe that we are witnessing the construction of a minority race.

    By Blogger abfh, at 8:23 AM  

  • Fore sam:

    I'm someone not accepted by the "Hub" and not accepted by the cure crowd. You mentioned that the severity of your son's autism affects your reasoning for the biomed approach. Look, my son has behaviors worse than any autistic child in our local area, according to his therapists. My son has rattled trained and seasoned Lovaas therapists. UNC-Chapel Hill described by son's behavior as "robustly autistic", which by the way I take a certain pride in. It's good to be number 1! We do ABA/VB and it has worked wonders in the language department, not so much in the socialization area. He speaks in full sentences. He vocalizes his emotions "I'm mad cause Daddy ask me to sit still", "I'm mad because no look at signs" and so forth. However, nothing in DMSA will work to "pull" mercury out of the brain. Mercury has the ability to pass the blood brain barrier. DMSA cannot pass the blood brain barrier and is thus useless and more likely harmful because of the other healthy metals it pulls from the body. If there isn't proven science, we don't use it, period end of story. Rather than focus on curing, we focus making my son the best autistic he can be, sort of like me if I can brag. That is the rub of some people on the "Hub" and its clear that divergent opinion is not accepted in all circles. However, I think we can all agree that doing anything that isn't "proven" is a serious mistake.

    By Blogger not my blg, at 9:40 AM  

  • Oh, one other comment. Your son is not "dead mentally". You just haven't learned to connect to him yet. Give it time and be persistent because you will find a way. To me, the biomed parents are the really lazy ones because they don't seem to want to do the really hard work of trying to find ways of connection. At least that has been my experience. Let me give you one example. Their is a parent in town with a child about my son's age. She doesn't take him anywhere out of fear of what others may say or how they may look at her child. This is what she does: chelation, MB-12, GFCF, HBOT, limited ABA, Omega 3, and countless other supplements. She is also responsible for telling the first preschool my child attended that my child has serious behavior problems and along with the psychological reports leaked to the director, my child wasn't allowed to attend. We sent him to another preschool, this time without the "label". He did great and has been asked to come back for the fall period. He likes other children and on Sunday, we started potty training (39 months) and he's doing great. Why, because we have learned to connect with him, despite his sometimes very difficult "behaviors". I understand him and his ways perfectly as I have a "been there, done that" type of experience with him. As I often tell his mother, "he doesn't scare me, I understand him". Despite the fact that he loves his mother to "death", I have learned how to teach him because I see him in me. Look inside and you will see much of your son in yourself. Once you are able to recognize that he is most likely like you in many ways, you will find out how to connect to him. Only then will you be able to "stop and get connected".

    By Blogger not my blg, at 9:54 AM  

  • Fore Sam:

    "When a kid is already dead mentally due to mercury poisoning, there is no choice...

    If he dies young, I will rejoice for him that he has excaped the nightmare that was his life."

    And we wonder why autistic kids are getting killed by their parents. If you want to study the psychology of such acts, we have a perfect specimen right here.

    By Blogger Joseph, at 1:02 PM  

  • Kassiane;
    I thought you had Rett's syndrome which isn't autism.

    Autism is a concept that describes a set of behaviors. In this sense Rett's can be seen as either a form of autism or a cause of autism. In other words, autism is a conceptual construct and a blanket term. Fragile-X and Rett's are physical realities that are part of that construct. The notion that Rett's and Fragile-X are not autism is another construct, the result of various people's opinions.

    By Blogger Joseph, at 1:06 PM  

  • NM wrote:

    If you can't handle the responsibility then get some help but stop trying to justify your desperate search for a cure and deep denial by trying to suck others into your fantasy world where you and your son will be playing golf together in a year or so once you have all of the mercury removed.

    I'm with NM. I've advised John before that he should think about giving up his son for adoption. Normally, I wouldn't think that's a good idea, because autistic kids are very sensitive, and don't like changes. Something like that could be very traumatic. But in this particular case, I think Sam is doomed with such a parent.

    By Blogger Joseph, at 1:17 PM  

  • Hi ABFH.

    I'm with NM, I really enjoy seeing new posts from you (always have).
    I'm going to use the acronym MBF from the concept. It's succinct.

    By Blogger Do'C, at 1:46 PM  

  • Kassiane;
    It's nice that you think you're smart. You seem fairly intelligent for a girl but you've been misguided. Asperger's is not genetic. It's simply a lesser form of mercury poisoning. We know this because, like autism, it did not exist until the 1940's when thimerosal began causing these things. You should've studied more history instead of genetics. You can learn a lot more.
    People on EOHarn are not fanatics. They simply represent the top of the IQ scale as they have been smart enough to think for themselves rather than listening to lying doctors, politicians and drug manufacturers. If you were half as smart as any of them, you'd realize this. You have potential kid, but you're guilty of fuzzy thinking. You've fallen in with bad companions and have been sucked into their obsolete thinking. When you grow up, you might smarten up.

    By Blogger Fore Sam, at 3:18 PM  

  • ABFH;
    I think the odds are higher of a non autistic man being lynched for going after an autistic woman.
    Of course, non autistic women preying on autistic men would be ignored.
    Is your father using ALA? It takes more than a few rounds of chelation to get much effect.
    Again, you all miss the point. I can talk to all of you ASD people here but my kid can't do that. He can't pay attention well enough to learn to type his name. You aren't appreciating the difference. These kids will never learn anything unless they get rid of the mercury.

    By Blogger Fore Sam, at 3:30 PM  

  • Joe;
    Rather than put my son up for adoption, I'd rather adopt one of you and cure you.
    Do you believe in God, Joe? If so, would you say this hell on earth is better than going straight to heaven? I notice a bunch of the so-called skeptics who think they're smarter than God and don't believe in him go along with the anti-cure mentality.

    By Blogger Fore Sam, at 3:37 PM  

  • Alexander's Daddy;
    A voice of sanity. At least you're trying to help your kid. My kid was so far gone that no ammount of ABA would've done anything for him. After chelating for awhile, it might help now.
    Chelation isn't just DMSA. It's the ALA that does pass the BBB that's essential. BTW, chelation is proven. Just ask Orac, although he won't admit it will cure autism, he does agree it's a cure for mercury poisoning. He's stubborn and won't admit he's wrong.
    You talk about finding a way to connect. We were connected. He had expressions that were identical to my father's. Those things disappeared around ten months of age and started to reappear after a year of chelation. I've witnessed the success while you haven't. Watch the News show this Sunday evening that talks about recovered kids. You can find the details on the EOHarm list.

    By Blogger Fore Sam, at 3:48 PM  

  • "Watch the News show this Sunday evening that talks about recovered kids. You can find the details on the EOHarm list."

    Cause everyone knows TV shows is real science. Might be presented - A "Part One" segment about the Southwest College Of Naturopathic Medicine's Chelation study that was canned by ASU's IRB? That's a good one Fore Sam - If that study goes beyond JAPandS, Medical Veriats, or Medical Hypotheses, it might sway my opinion about miracles. By the way, you forgot to mention which god you're referring to when you queried Joe.

    By Blogger Do'C, at 8:15 PM  

  • "People on EOHarn are not fanatics. They simply represent the top of the IQ scale "

    As we said in grade school:

    My butt.

    Incidentally, you've made enough comments on various blogs that anyone with a lick of sense would be concerned for your son's welfare. Does CPS know you're treating him for something he doesn't have? Does CPS know you fist fight with him?

    Cuz, you know, I think they should.

    By Blogger Kassiane, at 10:19 PM  

  • DOC;
    Yup, knock the publication when you can't knock the science. Cures for autism aren't miracles, just good science.
    There is only one God. He has several names.

    People from EOHarm would've had a more intelligent comment than "My butt".
    Am I supposed to fear CPS? Are you one of those "do-gooders" who call CPS to sneakily get even with someone you don't like? I've had to deal with a few of those idiots. Your proving your opinion of your intelligence is invalid.

    By Blogger Fore Sam, at 4:07 AM  

  • ABF: looks like you picked up a humongous flea.

    Fore Sam, I can run intellectual circles around you. You don't even have a basic grasp of human genetics.

    And EOH is a bunch of abusive fanatics. You're putting yourself forward as representative of THEM and of Generation Rescue. last I heard, GR wants their most obnoxious "rescue angel" to tone it down with the flaming.

    Oh. But he doesn't understand that.

    I hope someone takes your son. He deserves better.

    MY opinion of YOUR intellegence is that it's around low average. I have tests to PROVE where I am. But thanks to HIPPA my medical records are NONE OF YOUR GODDAMN BUSINESS.

    You act like a child, only worse. Because children can be taught. You cannot. Damn that must suck, being in your 50s and unable to learn. It'd be like early onset alzheimers.

    (isn't google fun?)

    By Blogger Kassiane, at 4:17 AM  

  • Did anyone notice how 'fore sam' described Kassiane as smart 'for a girl'? Really this kind of thing just strengthens my suspicion that most of the hardcore pro-cure lobby are hard-right reactionaries. Incidentally, there is no such thing as god.

    By Blogger Redaspie, at 9:22 AM  

  • "Yup, knock the publication when you can't knock the science. Cures for autism aren't miracles, just good science."

    Fore Sam,
    I'm knocking the science directly. If it were up to standards anywhere near 'good' science, it belongs in a top-notch journal. That's a direct comment about the science. If it's good science, we'll see the results in a real journal. I can't wait. And you know as well as I do that the science to-date can be knocked down all day long.

    Scientifically, you got nothin'.

    By Blogger Do'C, at 10:55 AM  

  • I notice a bunch of the so-called skeptics who think they're smarter than God and don't believe in him go along with the anti-cure mentality.

    I see you've decided to go with the "God's on my side" rethoric . You must be as enlightened as George W.

    And what exactly makes you think that God would be on the side of pseudoscientists and crackpots and not on the side of skeptics? Are you speaking to God now too? Or is it because God hates fags, just as you do?

    John, you should consider that having an autistic son might be a punishment for bigotry. Next, you might get a gay child. Maybe even a girl, considering:

    "You seem fairly intelligent for a girl but you've been misguided."

    By Blogger Joseph, at 11:38 AM  

  • DOC;
    Yup, knock the publication when you can't knock the science.

    Well, you know quite well that I knock the science even when it's not peer-reviewed or published in a decent journal. Others might disagree, but I think this is the right thing to do. It's actually easier to do this, because without peer-reviewers, the kinds of errors that get published are amazing. See, for example, my review of Geier & Geier (2004). Now, is there going to be a response to these rebuttals any time soon? I've been waiting for a while.

    By Blogger Joseph, at 11:49 AM  

  • Kassiane;
    You're amusing. You flit around telling everyone how smart you are but you can't understand why Pharma had to buy Bush, Frist and others to protect them from the children they know they harmed.
    I earned my Master's a long time ago and I've seen your IQ. It's a lot lower than mine. Pay attention to your elders and you might learn something.
    If, as you say, GR is unhappy with my abuse of neurodiversity, they certainly haven't said anything to me. Neurodiversity needs a lot more abuse in my opinion.
    Say a prayer and God will forgive you.

    By Blogger Fore Sam, at 12:03 PM  

  • Joe;
    How come you didn't answer my question about God but decided to alter my meaning to suit your purposes?
    Have you heard of Sodom and Gomorrah?
    I have two other normal kids and one is a girl. I will provide proper guidance so they don't turn into queers.

    By Blogger Fore Sam, at 12:08 PM  

  • DOC;
    Are rags that have lots of drug company ads your opinion of good publications. How does that work, the more drug ads, the better?
    I suppose Andy Cutler's science that has given my son lots of improvements is not good science to you. And, of course, the science that never bothered to test thimerosal is your idea of good science. So, science that harms babies is good and science that helps kids is bad? I guess that would confirm you as a sadistic child abuser. Maybe you should rethink your position.

    By Blogger Fore Sam, at 12:14 PM  

  • "Are rags that have lots of drug company ads your opinion of good publications."

    You've missed the point. The publication is irrelevant, it's the focus on scientific methodology that counts. Advertising is irrelevant if the science is good. Good science includes real peer-review, which in the long run fosters relevant, replicable research. Journals that employ rigorous peer-review regardless of advertising content publish better science compared to those that don't.

    "How does that work, the more drug ads, the better?"


    "I suppose Andy Cutler's science that has given my son lots of improvements is not good science to you."

    I'm not familiar with his work, and a personal anecdote is meaningless in the scientific community.

    "And, of course, the science that never bothered to test thimerosal is your idea of good science."

    Now you're equivocating on the word "science", you'll need to be more specific. If you mean "mainstream medicine", you're argument is a red herring and you know it.

    "So, science that harms babies is good and science that helps kids is bad?"

    A final argument based on equivocation, a red herring, and baseless assertions, otherwise known as begging the question.

    If by your claim that science harms babies you mean "mercury causes autism", bring scientific proof.

    If by your claim that other science helps kids you mean there is a scientific "cure", bring scientific proof.

    "I guess that would confirm you as a sadistic child abuser."

    Pure ad hominem.

    "Maybe you should rethink your position."

    I rethink it all the time, and if you have any real peer-reviewed science to bring to the table, I'll rethink it as well.

    By Blogger Do'C, at 1:01 PM  

  • DOC;
    You're failing at Neurodiversity 101. A required part of the syllabus is to become a mole on the EOHarm group and the Autism-Mercury group where you can learn all about Andy Cutler.
    Watch Dateline NBC this Sunday at 7:00PM EDT and you'll see proof of the good science that helps kids. I know you don't like anecdotes (the word is a good excuse to avoid the truth)but kids are being helped by unscientific parents who don't give a damn how it gets reported.
    The fact that thimerosal was never tested is not a red herring.

    By Blogger Fore Sam, at 1:40 PM  

  • Sorry to disappoint you Fore Sam, I just don't have time to be a mole on EoH. I guess I'll have to hope for a "barely passing" grade in Neurodiversity 101. I'll do a little due dilligence though.

    I did a PubMed search for "Cutler A" and "autism". 3 Citations. I only looked at abstracts because it looks like Cutler's work, while investigative, is by no means conclusive or proof of anything at all at this point.

    Confirmation of the association of the C4B null allelle in autism.

    The results of this study suggest that the human leukocyte antigen class III C4BQ0 significantly increases the risk for autism.

    The Association and Linkage of the HLA-A2 Class I Allele with Autism.

    The association and linkage of the class I HLA-A2 allele with autism suggests its involvement in the etiology of autism.

    The transmission disequilibrium test suggests that HLA-DR4 and DR13 are linked to autism spectrum disorder.

    We conclude that the TDT results suggest that DR4 and DR13 are linked to ASD.

    Re: Dateline - while it may make good TV, as proof of anything it falls way short. If "unscientific parents who don't give a damn how it gets reported" are going to rely on television, they might as well believe in bigfoot, ufos, and ghosts too. I hear there are some pretty convincing (albeit not scientifically) ghost shows on these days.

    A small part of the Dateline show might look at the AZ chelation study. Why would anyone want Dateline's take on that when Jim Adams is amenable to discussing it directly. He generously shared his research, details, references, etc. with me and a few local families. You don't need Dateline to look at the science.

    And yes, I am sure that Dateline will present other stuff in their story, but at the end of the day it is still a TV "story".

    By Blogger Do'C, at 2:08 PM  

  • Tch! Now we're down to insulting fleas. The flea in the pic is kinda golden colored, and a lot better looking than JB Junior. Probably has more sense, too.

    By Anonymous Anonymous, at 6:22 PM  

  • Dad of Cameron: I did a PubMed search for "Cutler A" and "autism".

    That's Adele Cutler. Much smarter than Andrew Cutler inorganic chemist/self proclaimed chelation expert.

    By Anonymous Anonymous, at 9:36 PM  

  • Anon, thanks for the correction. My mistake. Can you recommend a search that will reveal PubMed indexed work by Andrew Cutler?

    By Blogger Do'C, at 11:07 PM  

  • I am not aware of a search that will reveal PubMed indexed work by Andrew Cutler?

    Weh Don Need No Stinkin' Research!

    By Anonymous Anonymous, at 8:54 AM  

  • Fore Sam

    Your not important to me right now but the child is.

    I assume you feel the only option to helping your child is chelation. I will suggest to you there are other options. Options that actually do no harm. Being a parent is difficult and stressfull but hopefully you will see it is also wonderful.

    You can not help your child until your able to see for yourself that the child right now is an amazing being.
    If a parent looks at a child and feels they are seeing a "disease" or a "disorder" or some other negative, then you can not see your child.
    When a parent can avoid being selfish and instead be able to accept the individual before them for who they are right now, only then can you, the parent, begin to heal yourself.

    If you are at your highest point of stress then that energy is picked up by others around you.
    Everyone around Sam needs to be calm. He needs calm, peace, space.
    Without judgement and NEED TO FIX, sit, sit and watch, your son for many days. Let him teach you who he IS rather then you teaching him or trying to cure him into who you believe you want him to be.

    One of the sadest things is that for most sons they can never please their dad just by being themself.

    Do you feel you were never good enough for you dad FS?

    By Anonymous Anonymous, at 2:57 AM  

  • to sam I have a severely autistic son and he is severely to mderately dd also. He is a happy guy for the most part and has been a blessing to us. He was made the way he was for a reason. I don't know what that reason is. I also work in the field of group homes of people like my son. The clients we have are some of them severe to profound. Things like ware housing i am sure happens, but that doesn't mean thats where he is going to end up. You have to be choosy, and you do have a choice.And the people who work at my home's work at making our people's lives more enjoyable. The mental health field here is really into seeing peoples dreams and wishes come true.My son has his difficulties, he has headbanged, attacked me, hurt himself, and he screams and yells frequently, he has alot of OCD issues that interfere in his life, but overall he is a happy man.And i wouldn't be happy if he died early. Even if he had to go to a home soon. I have been looking at releaving the autistic symptoms, just those that make him miserable, but those who feel anything even if it damages them, is better than the autism are way off. There are things that are more painful to THEM than autism.

    By Anonymous Anonymous, at 10:06 PM  

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