Whose Planet Is It Anyway?

Sunday, October 04, 2009

Alfonso Cuarón Praises Child Rapist

The video I Am Autism—created by Alfonso Cuarón and Billy Mann for Autism Speaks—first describes autistic children as embarrassing, family-destroying burdens who don't belong in public places and then proclaims itself to be an expression of "love for our children."

As if that weren't sick and twisted enough, Cuarón made it clear how little interest he really has in the welfare of children by signing a petition in support of Roman Polanski, the infamous child molester who fled from justice in 1978 after admitting that he had drugged and raped a 13-year-old girl. Polanski was arrested last weekend while traveling from France to Switzerland. The text of the petition trivializes the crime as "a case of morals," praises Polanski's achievements as a film director, offers him "support and friendship," and ends by declaring that the petition's signatories "demand the immediate release of Roman Polanski."

That's so disgusting, it just boggles the mind. Cuarón seems to believe that autistic people should be kept locked away forever, as indicated by the statement in the video that it is "virtually impossible" for autistics to go out in public, but at the same time Cuarón evidently thinks it would be just fine to turn a confessed child rapist loose to prey on other vulnerable little girls.

The despicable attitudes toward children shown by Alfonso Cuarón and Autism Speaks have no place in our community.

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Thursday, October 01, 2009

Marc Sirkin, Apologist for Hate

Over the past few days, the clumsy attempts at damage control by Autism Speaks' chief community officer Marc Sirkin have reminded me of a certain former Iraqi Information Minister who acquired the colorful nickname Baghdad Bob as a result of his absurd propaganda during the US invasion in 2003, stubbornly insisting that American forces were surrendering even as the tanks rumbled through the city.

In honor of Sirkin's bumbling, I've created a parody skit in which Clueless Marc, the host of the We Hate Autistics Community Radio Show, has a conversation with a caller:


CLUELESS MARC: Hello and welcome to We Hate Autistics Community Radio. I suppose that, like the many parents I've just been discussing, you want to talk about the excellent I Am Autism video and how accurately it reflects your life.

CALLER: You know, Marc, not everyone who has an interest in autism issues is a parent.

CLUELESS MARC: Well, of course not. Grandparents, siblings, and other relatives all have to deal with autism's awful burden and embarrassment too…

[angry crowd chanting]

CALLER: Gee, Marc, it sounds like you might have some protesters outside your studio.

CLUELESS MARC: No, that's just Suzanne Wright watching her soap operas in her cushy office. She likes melodramatic storylines and often turns the volume up too loud.

CALLER: Yeah, I've noticed that.

CLUELESS MARC: Let me tell you about how much support Autism Speaks has gained from people all across the world recently! Our walks and our public relations efforts have been going wonderfully well.

[squeaky wood noises]

CALLER: That wouldn't happen to be the sound of your nose growing, would it?

CLUELESS MARC: Of course not. I had my nose perfectly sculpted by one of the finest plastic surgeons in New York.

CALLER: Word has it, Marc, that you admitted in an interview with New Scientist about the controversy that there's no factual basis whatsoever for the video's claim that having an autistic child is sure to make a marriage fail. What's up with that?

CLUELESS MARC: The video was just a personal poem from a father's perspective and was not intended to reflect Autism Speaks' views.

[tires screeching, two icky-sounding splats]

CALLER: That's Billy Mann and Alfonso Cuarón getting thrown under the bus as Autism Speaks frantically backpedals on the video, disclaiming all responsibility for its extensive involvement, from Suzanne Wright's personal solicitation of video footage to Autism Speaks' much-publicized showing of the video at a United Nations conference. Aren't you starting to worry about your job, Marc? After all, being a new hire and a very visible face in the community, you're the next logical sacrifice when the furor gets stronger.

CLUELESS MARC: Gah, I'll have to go back to working from my basement as a consultant, barely able to pay my greens fees! Um, I mean, of course there's no reason for me to be worried about my job, Autism Speaks is a tremendously strong organization and always has shown great loyalty to its people.

[printer starts churning out resumes]

CALLER: Well, good luck finding another gig, Marc.

CLUELESS MARC: La, la, la, I can't hear you! This call must have accidentally gotten disconnected by some strange fluke! And now, I'm excited to introduce the next guest on the We Hate Autistics Community Radio Show, a clever fellow by the name of Bernie Madoff who has several insightful things to say about Autism Speaks' business model…

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Tuesday, September 29, 2009

Disabled World editorial blasts Autism Speaks

Thomas C. Weiss, a regular columnist for Disabled World, has weighed in on the controversy surrounding Autism Speaks' video "I Am Autism" with an editorial entitled Autism Speaks: Friend or Foe?

Although Mr. Weiss indicates in the article that he had been a supporter of Autism Speaks in the past, he also makes it very clear that after watching the "I Am Autism" video, he now sees the organization as anti-disability:


"I Am Autism speaks so badly of the current leadership at Autism Speaks that I have to wonder how long the likes of Mark Roithmayr and Elizabeth Emken can remain in their current positions. The organization of Autism Speaks as a whole will most likely experience a reduction in donations from the public at large due to this horrendous production…"


Mr. Weiss further goes on to liken Autism Speaks' hateful message to the Nazis' attitude toward disabilities, bluntly stating that he finds Autism Speaks' international influence to be terrifying in light of its destructive message:


"…the organization Autism Speaks would have people believe that People with Autism are plague-carriers. Autism Speaks likens People with Autism to family-destroying, misery-creating, hope-crushing, woe-enhancing, sleep-depriving, marriage-killing monsters. Autism Speaks presents People with Autism as being an instant ride to bankruptcy.

Not since reading about Nazi Germany have I seen such an outright negative portrayal of People with Disabilities. The fact that Autism Speaks is *supposed* to be supportive of People with Autism makes me absolutely shudder with disgust. I am not alone where this dismay at an organization that declares itself to be promoters of Autism and People with Autism yet presents such a hateful and destructive message is concerned…

…Instead of placing value on people with autism, Autism Speaks has presented them as some kind of horrifying monsters, loose in society and bent on destruction. Autism Speaks wields immense amounts of money and power, with the ability to sway massive numbers of people in societies across the planet in relation to Autism. They are not using these abilities to the benefit of People with Autism."



Many thanks to Mr. Weiss and Disabled World, as well as the many cross-disability organizations and individual activists who have expressed their opposition to Autism Speaks' hate speech, for standing with the Autistic Community in solidarity.

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Monday, September 28, 2009

Autism Speaks Falsely Claims Video Removed

After numerous concerned people wrote to Autism Speaks stating their objections to the "I Am Autism" video, the organization's chief science officer, Geri Dawson, prepared a form reply in which she claims that Autism Speaks understands the criticism and has removed the video from its site in order to be more respectful toward autistics. But in fact, the video is still there.


Dear [name],

Thank you very much for sending me your letter and telling me about your perspective and feelings regarding the “I Am Autism” video. I understand and respect your perspective and I am truly sorry that the film offended you. The video was not intended to reflect Autism Speaks broader viewpoint or attitude toward persons with autism spectrum disorder. Rather, it was created by two fathers of children with autism – Billy Mann, a Grammy-nominated songwriter, music producer and Autism Speaks board member, and Alfonso Cuarón, an Academy award-nominated film director. It is based on a personal poem written by Mr. Mann. It is an intensely personal expression by these two fathers. It was their hope that the piece would inspire other voices and artists in the autism community. It has greatly offended some people, however, and we have removed it from our website.

Again, thank you for writing to me and sharing your thoughts. You can rest assured that I will continue to advocate for a respectful and compassionate attitude and support for persons with autism spectrum disorder.


Sincerely,

Geri Dawson



Seems to me she'd be a lot more convincing if Autism Speaks hadn't been consistently describing autistic kids as horrible burdens for years, beginning with the Autism Every Day film in 2006. And what's more, the I Am Autism video was still on the Autism Speaks website when I looked just now, very prominently featured on a page that boasts of how it was created especially for a United Nations event that Autism Speaks' co-founder Suzanne Wright hosted.

autismspeaks.org/press/united_nations_world_focus_on_autism_2009.php

If you're going to lie to us, Geri, you could at least try to get your story straight…



Edit, October 1: Autism Speaks finally wised up and removed the page mentioned above. Sure took them long enough...

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Saturday, September 26, 2009

Solidarity


Image: Unionists challenge the Communist regime in Poland, 1981


In response to the despicable "I Am Autism" video by Autism Speaks, the autistic and cross-disability communities have been standing strong in their united opposition. Today in Portland, Oregon, 15 activists organized by ASAN's Portland chapter protested at an Autism Speaks walk and got local news coverage on two channels. [Edit: After mentioning the protest on the 6 PM news, TV station KOIN 6 followed up with an interview of ASAN chapter leader Elesia Ashkenazy, which was the lead story at 11 PM. Way to go, ASAN-Portland! Also, more coverage of the protest on FOX 12 can be seen here.]

Video parodists, bloggers, and others are all over the Internet showing their outrage. I've compiled a list of websites critical of the video below. Please feel free to copy and repost elsewhere to show your solidarity, too.


Parody/Response Videos on YouTube

I Am Autism Speaks

I Am Autism (Hatred and the Autistic Community)

I'm Autistic: Parody of Autism Speaks Video "I Am Autism"

I Am Socks - video response to "I Am Autism"

I Am Socks response to I Am Autism (short version)

I Am Socks response to I Am Autism (no music, clearer audio)

You Are Not Autism. I Am.

We Are the Real Autism

I Am Autism (I Am Nobody)


Blog Posts and Other Articles

When Will They Listen?

Autism Speaks & Alfonso Cuaron: Full of Fail

I Am Autism & The Embarrassment Trope

Harry Potter and the Bigoted Charity

Who Does Autism Speaks Speak For?

"I Am Autism" -- Awareness video by Alfonso Cuarón -- "Ransom" Reprise

Autism Speaks - the sound and the fury

Autistic Community Condemns Autism Speaks

Taking Action Against "I Am Autism"

News Coverage of Autism Speaks Controversy

Groups Outraged Over Video Released By Autism Speaks

You aren't autism. We are. Shut up and listen.

Autism Speaks Hits A New Low

3 O'Clock in the morning

Autism Sells

No, I Am Autism

Autism Speaks, but What is it Saying?

Autism: responsible for divorce, financial ruin, war, tooth decay, and so on

Hare About Autism Speaks

Awareness versus propaganda

Autistic Community Condemns Autism Speaks

I Am Autism Speaks

Autism Speaks PR Meltdown (Updated)

Responding to "I Am Autism"

Autism Speaks Gets It Wrong Again: I Am Autism Video

"I Am Autism" Video: Autistic Community Condemns Autism Speaks' Campaign

Taking Action Against "I Am Autism" Video

The Way Things Get Said

Enemies of Autism Speaks

Autism Speaks has done it again.

Don't Speak for Me

I Am Autism Video (Autism Speaks Gets It Wrong Again)

Response to Autism Speaks "I Am Autism" Video

News Coverage of Autism Speaks Controversy

Warning to Autism Speaks

Autism Speaks media campaign…I am autism

The Autism Speaks bait and switch with I am Autism

Why I don't like "I Am Autism"

I am Autism Speaks

Our Message To Suzanne Wright

Autism Speaks and the Underpants Curse

Autism Speaks Deceives Parents

I Am Pissed

Autism Speaks reaches a new low

An Open Letter to Geraldine Dawson

An Open Letter to Laurent Mottron

What if someone did this with, say, Down's Syndrome?

Calling All Celebrities: Please Stop Supporting Autism Speaks!

Tis NOT My Life!

Facebook: Protesting Autism Speaks "I am Autism" Video

"I Am Autism" -- Awareness video by Alfonso Cuarón -- "Ransom" Reprise

I am Autism Controversial Video

"Autism Speaks" again attacks autistics with neurodiversity insensitive advertisements

Autism Speaks Should Learn When to Shut the Hell Up: I am Autism. Not.

ASAN protests new Autism Speaks "I am Autism" campaign

Autism Speaks: it just got worse

Autism Speaks PSA "I Am Autism" faces major backlash

Autism is a color

To the leadership of Autism Speaks

The Latest Propaganda from Autism Speaks and My Response

Autistic Self Advocacy Network, Australia

Autism Speaks' Unethical Video Condemned

Autism Speaks Does Not Speak For Me

Autism Speaks Once Again Demonizes Autism

Backlash and a Few Days Out of the Loop

Autistic Speaker-less

ASAN issues press release condemning Autism Speaks

An Open Letter to Suzanne Wright of Autism Speaks

Help Fight Back Against Autism Speaks' Attempts to Speak for Autistic People!

Autism the boy is Alex Bain - Autism Speaks is just so Wrong

How's Your Day Going?

Two Opposing Views of Autism: Which Strikes a Chord with You?

AUTISM SPEAKS DOES NOT SPEAK FOR ME

It's Not an Entity that steals your children. I am Autism propaganda

Autistic Self Advocacy Network, United Kingdom

National Autistic Society (UK) Response to I Am Autism

I Am Autism, We Are Furious

Autism Speaks Hits a New Low

Autism Speaks: Don't Speak for My Family

“I am Autism” Isn’t

Autistic Community Condemns Autism Speaks' "I Am Autism" Campaign

Worldwide Resistance to Autism Speaks

blah, blah, blah

I Am Autism - Autism Truth from the inside looking out

Autism Speaks Stupidly

Autism Speaks and the Underpants Curse

Autism Speaks Deceives Parents

Don't Support Autism Speaks: Let Autistics Speak for Themselves!

Autistic Self Advocacy Network UK - Cambridge

Autistic Community Condemns Autism Speaks’ “I am Autism” Campaign

ASAN Protests Autism Speaks "I am Autism" Campaign

Angels all around us so be careful what you do

Tell Bruce Springsteen Autism Speaks Doesn't Speak For Us!

Latest attack from Autism Speaks

New Autism Speaks video

Rethinking Autism

Autism Speaks posts disgusting Video

Autistic Community Condemns Autism Speaks’ “I am Autism” Campaign

Responding to "I Am Autism"

No Representation Without Representation!

Scots Every Day

Autism Speaks ‘I am Autism’: A short response.

PRESS RELEASE: Autistic Community Condemns Autism Speaks "I Am Autism" Campaign

I Am Autism, and Autism Is Me

From Birth of a Nation to I Am Autism

Quit the Prevarication, That Video Deserves Elimination!

What Celebrities Need to Know about Autism Speaks

An Open Letter to Geri Dawson

Late to the Party

For You

I Am Autism, Autism Speaks Once Again Shows Their True Colors

The Failure of Autism Speaks' E=m*c Squared

"I Am Autism" Autism Speaks Fear-mongering Again

Autism Speaks - Friend or Foe?

'Poetic' autism film divides campaigners

I Am Autism - I'm what happens when you cannot accept Autism

Autism Speaks to confusion within its ranks


Of course, the videos and articles listed above are not a complete list. In fact, they're not even a tiny percentage of the firestorm raging across the Web. While looking at Sphere, an aggregator site, I noticed the following message:

29,238 results found related to the I Am Autism Video by Autism Speaks Controversy

[Edit: As VAB points out in the comments, Sphere apparently made an error. However, there are certainly a great many posts and videos relating to the controversy, whatever the actual number may be.]

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Friday, September 25, 2009

Autism Speaks Deceives Parents

As a recent post on the Left Brain/Right Brain blog pointed out, Autism Speaks engaged in a "bait and switch" when Suzanne Wright asked parents to contribute video footage of their autistic children for a new project, without disclosing any of the nasty details of what she planned to do with it. Would the contributors to the "I Am Autism" video have agreed to participate if Autism Speaks had admitted at the outset that it was planning to demonize autistic kids as embarrassing burdens who destroy their parents' marriages and dreams?

Well, at least one parent who posted a comment on the video's YouTube page, under the name BarrysDaughter, made it quite plain that she felt deceived by Autism Speaks' request for video contributions from parents. She wrote:


"I do have 2 autistic children and a husband on the spectrum. When they first suggested a video I was eager to send them one till they outlined what they wanted.


My children and husband don't want or need to be CURED what they do want is people to treat them the same as anyone else, stop the bullying and put more staff in schools to support them…"


How has Autism Speaks managed to get away with exploiting so many parents and taking their support for granted, while draining large amounts of money away from their communities and increasing the stigma and prejudice faced by their families? The answer seems to be that Autism Speaks has artfully packaged the fundraising walks as feel-good social events, thus creating pressure for people to attend because their friends are doing so, and never mentioning the fact that almost none of the money raised goes toward community services and supports. Here's a quote from a blog post written by a mother, Ange, explaining her reasons for participating in Autism Speaks walks:


"Our Autism Speaks walk is coming up soon. In the past I have had very conflicted feelings about this walk since I pretty much can't stand the organization's scare tactics. But I have walked to support my friends and their families more than anything else. I don't know if can do it anymore. I can't just write this off as fundraising anymore or ignore it while I support my friends. I can't ask friends or family to donate to an organization that makes my children look like they have some deplorable, deathly communicable disease that is spreading through the air. Nor can I in good conscience make my children participate in the walk, enforcing a message that they had no part in creating."


For Ange and other parents in her situation, I'd like to make a suggestion: It's quite possible that your friends and their families have the same concerns about Autism Speaks that you have described. Maybe, in the past, they walked to support you and their other friends more than anything else, while ignoring their qualms about the organization for the same reasons you did. It's understandable that you would worry about how your friends might respond if you said anything to them about your conflicted feelings; but you may very well discover, if you do spend a few minutes talking with them about it, that they're just as upset about Autism Speaks' scare tactics as you are.

There is power in numbers, as we know, and that power doesn't have to stay on Autism Speaks' side forever. If just a few courageous parents take the initiative to start a conversation with their friends about why fear-mongering tactics don't deserve their support, and a few of the friends do the same, and so on—then it won't take long, at all, for the voices of reason and decency to prevail.

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Thursday, September 24, 2009

Autism Speaks and the Underpants Curse

Guest post by Rita Skeeter, award-winning journalist and ultra-reliable source for all the dirt you've ever wanted to read.


That was the name we gave it when I was a schoolgirl at Hogwarts, although the dry dusty textbook simply described it as a spell to reveal the embarrassing truth about someone. I shan't go into the details of the spell on a Muggle blog, but I'll say that it was quite popular with the students because its hapless target might suddenly find himself standing in front of the classroom in nothing but his brightly colored cartoon-print underpants.

When wielded by a more adept and sophisticated user of magic, such as yours truly, the spell has many subtler uses. I've often found it helpful for such purposes as inducing a corrupt Ministry official to make a misstep, thus giving me fodder for another of my highly acclaimed investigative reports while also providing a valuable public service.

I recently put the Underpants Curse on two ridiculously arrogant Muggles who were overdue for some public exposure of the less flattering sort. The first was Suzanne Wright of Autism Speaks, whose atrocious attitude I've mentioned before. She had been putting on a halfway convincing pretense of caring about autistic people, by means of high-profile lobbying for mandatory insurance coverage; why, she'd even managed to go more than a year without spewing any of her usual vitriolic rhetoric about eradicating autistic people. When she appealed to parents to donate video footage of their children for a new promotional campaign, she didn't raise much suspicion as to her intentions.

As for Alfonso Cuarón, the other arrogant fool I put the curse on—well, that inept excuse for a filmmaker has offended so many high-placed people in magical society that I'm surprised he hasn't gotten an Unforgivable Curse put on him yet. If it weren't bad enough that he caricatured our lives for the entertainment of common Muggles, he didn't even pay any attention to the details. I mean, really, who doesn't know that werewolves have hair? And showing that unkempt, ill-mannered little hooligan Hermione Granger as a paragon of fashion. Puh-leeze!

Now, I'm quite clever if I do say so myself. But even though my outstanding talents are widely renowned, I wasn't expecting when I put the Underpants Curse on Wright and Cuarón that both of them would reveal their true selves so thoroughly in one fell swoop. What could they have been thinking when they decided to make their "I Am Autism" video, which—just like the short-lived and widely condemned Ransom Notes ad campaign—portrays autistics as kidnapped by an evil monster and intolerable burdens on society? This explanation is as good as any (though I must say it's rather disrespectful toward my stellar reporting).

Whatever their reasoning or lack thereof might have been, their Bigots-R-Us store-brand underpants are now on display for the whole world to see. Nobody who watches that video will ever again think of Cuarón as anything but a third-rate propagandist. As for Suzanne Wright, if enough outraged autistics and their friends and family members take action, this might finally be the moment where Autism Speaks' true colors as a hate group become so obvious that its sponsors all jump off the sinking ship with their little furry tails twitching anxiously as they swim off into the sunset.

Stay tuned—there's more to come. A lot more.

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