Ripping, Running, and Advocating
Even if you don't have time to write long detailed comments, please take a few minutes to put something together. It's important to make sure we get enough responses from self-advocates and pro-neurodiversity allies that the IACC knows it can't just ignore us. If you're stuck wondering what to write, here's a link to last year's ASAN comment, which has some useful talking points.
Edit: Here's a guest comment (thanks Katie!) to show how creative some of our folks are.
By Katie Miller
I did mine this morning. Here is a humorous excerpt:
What are the new opportunities and needs for advancing research and knowledge about ASD in section IV. "Which treatments and interventions will help?"
Instead of wasting money to prove once again that vaccines are not linked to autism, I think you should study why people believe in conspiracy theories, and what we can do to cure and prevent it. Research treatments and interventions that have helped holocaust and AIDS deniers. Establish a genetic bank of conspiracy theorist cell and tissue samples to identify risk factors and eventually lead to prevention and/or cure. Is believing in anti-vaccine theory linked to intelligence, emotional instability, or other genetic risk factors? Does it strike all populations equally? What can we do to help these people have a better quality of life? It is an enormous financial and psychological burden to care for an anti-vaccine theorist. The money they spend on dangerous, ineffective treatments for their children is enough to bankrupt a family, costing over $4 million across the lifespan of the theorist. Their numbers are increasing to epidemic proportions. Action is needed now.